Broken & Woken

Thanks to Felix and EK & C, I get to meet an unexpected, often delightful group of people, many of
whom I can’t help but fall in love with. There’s my favorite plumber-turned-para-olympic athlete-turned

Felix Applauding Rosanne Cash

NYC Commissioner, my favorite famous poet couple, my favorite speechless child who chants with the haunting beauty of a Gregorian monk. I’d like to use this blog to interview the people I come across, to discuss their current projects and ideas and explore how their experience with disability has affected their thinking, working, moving, loving, being, etc. All this to say, I do not want Woken & Broken to focus only on EK & C, but to extend outwards, spotlighting people who are making the intersection of culture & disability flower, ferment, and bubble over.

That said, I am starting local with a completely objective account of EK & C’s May Soiree, held last week at Littlefield. From a scientific perspective, this was the best gala ever. There

Fabulousness

were three best things:

Best thing #1: The first ever Felix Awards, EK & C’s humble alternative to the Oscars, intended to honor writers, artists and thinkers whose work teases the line between “disabled” and “abled,” tweaking, deepening and challenging the public perception of disability. What a thrill to see Karen

Andrew Solomon

Pittman present the Felix in Art to Jill Mullin, the editor of Drawing Autism, an electrifying collection of art by an international array of artists on the autism spectrum. And I got to meet the incomparable Rosanne Cash! Who graciously gave the Felix in Writing to Andrew Solomon for his thoughtful, in-depth, and analytical study of the difficulties and beauties of raising children with disabilities, among others, in Far From the Tree. I’m still reeling from the moving speech he gave us all.

Best Thing #2: The party!!! I got to wear my sequined rainbow shirt, dance to Miss Ida Blue, hug old friends and meet new ones. There were so many people! Over two hundred. Best of all, I did not organize it. Board members Micaela Walker and Vanessa Connelly dreamed up the circus theme and brought in all those stilted, fire-throwing, balancing, juggling, sword-swallowing wonders. Vanessa’s husband, the filmmaker and

father extraordinaire Zachary Raines made that beautiful movie. The staff at Extreme Kids and our trusty volunteers glued the whole thing together with their consummate flair. Which brings us to...

Best Thing #3: The number of people involved and the roiling, creative energy of those people

The scene...

indicates how we’ve grown as a community. If we can put on a show like that, our barn-raising can’t be so far away...